A Lephalale mother is appealing to doctors, surgeons and members of the public to help her 10-year-old son, who has spent most of his life battling a rare, undiagnosed medical condition affecting his tongue and facial features.
Dimpho’s medical journey began shortly after birth when he was admitted to Polokwane Provincial Hospital for scans and tests. He was later transferred to Steve Biko Academic Hospital, but his family says no diagnosis or treatment plan was provided.
As his condition deteriorated, Dimpho was referred to George Mukhari Academic Hospital, where he underwent his first operation at just one year and four months old. He spent three months in hospital before being discharged and referred back to Polokwane Provincial Hospital for follow-up treatment.
Since then, his case has been handled by several public healthcare facilities, including Ellisras Hospital, Mankweng Hospital and Marapong Clinic. However, despite years of consultations, tests and referrals, the family says they are still without a diagnosis or permanent treatment plan.
His mother, Tselapedi Lebogang Portia, said they were often told that scanning equipment was not working or that doctors would contact them once further arrangements had been made.
“Those calls never came,” she said.
In a final effort to find answers, the family turned to private hospitals in Sandton and Waterfall, where additional scans were performed. However, the family’s medical aid benefits were exhausted before Dimpho could undergo the surgery doctors recommended.
Despite his health challenges, Dimpho continues to attend Sedibeng Special School for the Deaf and Disabilities in Lephalale, where he is described by teachers as a cheerful and determined learner who refuses to let his condition define him.
Portia is now appealing to medical specialists willing to assess her son’s case and provide the treatment that could transform his life.
She is also calling on members of the public, charitable organisations and anyone able to assist through donations, medical expertise or referrals to come forward.
“Every call, share, or act of kindness brings Dimpho closer to the treatment he deserves,” Portia said.
Those wishing to assist can contact Portia on 075 237 1243 or 060 793 7555.
